Remembering the Holocaust – and the disabled victims who died in the T4 programme

In this extract from my book, Scapegoat: why we are failing disabled people (Portobello, 2011), on Holocaust Memorial Day, I am sharing my analysis of how the T4 Nazi killing machine was inspired by eugenics enthusiasts in the UK and the US. It’s a grim read, I’m afraid, but important to remember why so many people died. Never again.

Extract from: Scapegoat: why we are failing disabled people (Portobello, 2011)

by Katharine Quarmby

The legitimisation of eugenic views through Europe and American ended in a logical, if horrifying outcome: the systematic murder of thousands of disabled people in Germany, after the Nazis came to power in 1933. The National Socialist Party wanted to create a pure Aryan nation, and eradicate the taint of the Jewish people (as well as homosexuals and gypsies) But a lesser known part of their moral thought was that “degenerate”, impaired Aryans should also be eliminated. In some ways what happened to Jewish people was a tragedy foretold in the slaughter of innocent disabled children and adults, used to perfect the killing technology that was then practised on the Jews. Racial hygiene, as Hitler called it, started with the social cleansing of disabled people.

The artist, Liz Crow, has spent the last two years investigating the process that lead up to what was known as the T4 killing programme, for her art installation, Resistance. She has identified a systematic “softening up” of the population so that they would be prepared for the programme.

One part of that campaign was to open asylums to the public (as in the Victorian freak-shows), to promote the racial hygiene laws. Thousands visited in the mid 1930’s, including many members of the SS. Each tour, Liz Crow says, “culminated in a lecture illustrating, via the inmates, symptoms and the necessity for eugenic measures.”

Another strand of the campaign was through film and posters, stressing the cost of disability (similar to the less systematic, but no less brutal campaign in the US). One example she has found, from a sequence in a Reich propaganda ministry film, shows disabled people lying in cot beds, with the strap line: “Life only is a burden”. Another, which combines the Nazi attitude towards minority ethnic groups and disabled people, is of a film of a black man holding out a begging bowl, with the strap-line: “Mentally ill negro English, sixteen years in an institute costing 35,000 Reich marks.” As Liz Crow comments: “what happened to this (disabled) community served as a prototype for everything that came later….Had people intervened at that point, presumably, what came next would have been, in some way, different…disabled people were the guinea pigs for the next phase.”

The first law that the Nazis passed on coming to power was the Law for the Prevention of Genetically Diseased Offspring, instituted on July 14, 1933. Those with deafness, schizophrenia and other “malformations”, such as learning difficulties were prevented from breeding by sterilisation. The law was based on the laws functioning in Chicago, drafted by Henry Laughlin. Indeed, there was much admiration in 1936 of Nazi doctors for American eugenicists – even awarding one an honorary doctorate.

Hitler and other leading Nazis were also much influenced by Sparta, where he admired “’the exposure of sick, weak deformed children, in short their destruction, was more decent and in truth a thousand times more humane than the wretched insanity of our day which seeks to preserve the most pathological subjects.” Nazi propaganda against disabled people increased, labelling them “unworthy of life”, “useless eaters” and highlighting their burden on society in print and films. Hitler’s Strength Through Joy campaign prioritised getting rid of the “syphilitics, consumptives, hereditary degenerates, cripples and cretins”. He wrote in Mein Kampf that “the lame and the defective are a scourge on humanity”.

The decision to eradicate disabled children started with Gerhard Kretschmar, and accelerated shortly afterwards, apparently when other families with disabled offspring also petitioned Hitler for permission to kill their children (although some German writers were advocating this solution as early as 1920). It is estimated that at least 5000 children, from newborn babies up to juveniles, were murdered. Some were starved, others gassed.

In July 1939 planning of the T4 programme (so-called after the street address in Berlin where it was co-ordinated) of mercy killings began. An experimental gassing procedure was carried out in the winter of 1939, and the Reichs-Committee for the Processing of Serious Genetic Diseases was also formed that year, collecting data on infants and ‘deformed newborns”. German doctors took part voluntarily in the programme, and the earlier, related programme of sterilisation. The German paediatrician, Hartmut Hanauske-Abel, who has examined many of the official documents relating to both programmes, suggests that they did so because they were convinced of the rectitude of eugenics, the programme was profitable for them and it released corpses for medical experimentation. (When he first published his findings in the Lancet in 1986, he was suspended from practising as a doctor in Germany. He later won an appeal against his suspension. )

He writes about the programme thus: “The practical experience obtained in the killing hospitals of T4 provides the core for the annihilation technology of the death camps, often implemented by the same technical and medical personnel.” He concludes: “Changes which today are interpreted as causing the downfall of the German medical community were at that time warmly welcomed by the widest segments of that highly educated biomedical and scientific elite.”

One nurse involved in the children’s killing programme, at the Hadamar facility, in northern Germany, one of the six institutions where disabled people were murdered, Chief Nurse Irmgard Huber, said at her trial in 1947: “The lives…are just as valuable as my life, but I couldn’t change anything there. I didn’t have any say. I couldn’t report anything. I avoided the matter.” Instead, she distributed sweets to the children before they went to the gas chamber.

No-one abroad seemed much interested – except other euthanasia enthusiasts.
In 1939, when Germany started to practice euthanasia against disabled children and adults, one officer in the American Eugenics Society commented it showed “great courage”. Indeed, it is estimated that by 1941 the numbers of those sterilised in the US had reached nearly 36,000. One doctor, Joseph Dejarnette, a doctor from the state of Virginia, commented that “the Germans are beating us at our own game.” In 1942 an article in the journal of the American Psychiatric Association called for the killing of all “retarded” children over five.

Hitler signed the order to start killing disabled adults on September 1, 1939, giving permission for those who were “incurable” to be “accorded a mercy death.”

Grey buses, with blacked-out windows, would arrive outside villages, local asylums and hospitals to take disabled people away. They were known to children as “the murder box” and mothers would frighten their children, saying that they would be taken away in them if they were naughty.

By the end of the war it is thought that around 200,000 disabled citizens had been murdered, among them the insane, the disabled, the tubercular and the retarded, as the Nazis called them.

The killing, one writer, Hugh Gregory Gallagher, commented, was methodical and scientific. “What was interesting and important about the killing program is not the mad-dog killers, but rather the careful, orderly and quite medical manner by which the full Germany medical and scientific establishment proceeded to kill its patients over a period of years.”

One witness recalled that when the killing first started, beds were made with fresh linen and warm blankets. When people arrived to be killed, they were given hot coffee and warm rolls. Of course we will never know whether this was genuine compassion for their fate, or a desire to make the killings easier to achieve. Soon, however, the numbers of those due for killing rose and the system became stressed. The Nazis started to reuse coffins (by designing them with a flap that opened in the bottom to allow the corpse to fall out) and started to dig mass graves, especially for children.

Some churchmen remonstrated. The Bishop of Limburg protested in 1941, writing to the minister of justice: ‘the citizens of Hadamar watch the smoke rise out of the chimney and are tortured with the every-present though of the poor sufferers’. Another, the bishop of Paderborn, said “among those unhappy beings who are destined to be killed or who have already been killed, there are many who aside from partial disturbances are mentally completely clear and who know what is going to happen to them.” However, one influential Catholic, Joseph Mayer, became an apologist for the Holocaust, writing: “moral law applies only to the mentally normal, rational individuals. Mental patients do not belong in the moral order, neither as subjects nor in terms of implementation.” Later he prepared a report saying that there were reputable moral arguments for and against sterilisation on both sides.

Before long, the regime was even killing World War One veterans and even shell-shocked veterans fresh from the Western front. However, this policy was short-lived, partly because it affected troop morale.

There were poignant scenes. In one village, Absberg, the villagers and abbess protested against disabled residents of the abbey being taken away in 1940. The abbess said a special mass for them, and one eye-witness reported: “They were seen as stirred up, like animals”, and refused to go. One woman said “I don’t want to go.” The people of the town gathered, and waved goodbye to their friends causing wide-scale disgust as the news spread. In another village, not far away, in Bruckberg, those who were about to die visited almost every house in town to say goodbye.

But the Absberg and Bruckberg protests, such as they were, did have an effect. The secret of the grey buses was secret no longer. The villagers of Absberg protested to their Bishop, Von Galen, who thundered from his pulpit that what was happening must stop. T4 was cancelled officially shortly afterwards, in August 1941. But unofficial killing continued thereafter – in what is known as the “wild phase” of the programme.

The banality and playfulness of the evil often perpetrated against disabled people, is best exemplified in what Hugh Gregory Gallagher claims happened when the staff of Hadamar were assembled, in the midsummer of 1941, to celebrate the 10,000 murder in the institution. The staff celebrated the anniversary with beer and wine, in the same room where the people had been put to death. The body of the murdered man was adorned with flowers and laid on a gurney, decorated with small Nazi flags. The hospital book-keeper, Mr Merkle, in the words of one witness, “turned his collar about, put his coat on backward, and intoned a burlesque eulogy of the deceased insane person.”

The physicians who participated in the euthanasia campaign have mostly never been successfully prosecuted. They did not stand trial at Nuremburg, unlike other Nazi mass murderers because their crimes had been, in the main, perpetrated against other German citizens, rather than foreigners. As a result, Professor William Seidelmann writes, “Absent from the dock were the leaders of the medical profession of the Third Reich, in particular the academic and scientific elite. It was this elite who legitimised the devaluation of human life and set the stage for medical crimes—crimes in which leading academics and scientists were either principals or accomplices.” There may have been another reason, too, for the paucity of trials. Liz Crow argues that the Nuremburg prosecutors were clear in their minds that what happened to the Roma, the Jews and other groups was abhorrent. “But they were confused about whether killing disabled people was a public service. The prevailing attitudes about disabled people, that they were inferior, pitiable and burdensome, defined their judgement.”

Back in the UK, the return of the war wounded did increase public sympathy for the physically disabled and those with shell-shock and other mental health conditions. Churchill, too, had mellowed. One of his last acts as a war-time Prime Minister was to commit the so-called “mental millions” to support those returning from war, with their nerves in shreds. One third of servicemen invalided out of the army had been discharged on mental heath grounds. Disabled people had gotten angry at last: veterans from both world wars lobbied for the right to work through organisations such as the National League for the Blind and Disabled, holding sit-ins to force government to ensure their right to employment.

The end of the war did achieve two things for disabled people – it confronted Britain and America with the ugly reflection of their own ideas in Nazi Germany – and it created more sympathy for some categories of disabled people – though not all within British society. The many disabled war veterans, in particular, normalised physical impairment for many. And the end of the war was also the beginning of the end for the institutions – but with numbers reaching a record 150,000 in 1950, it was to prove a very long journey.


As for Gerhard Kretschmar, his identity was concealed from us for over fifty years, known only as child K in official terminology. His short and miserable life was hidden in the Stasi files in East Germany, and only came to light when a German historian, Ulf Schmidt, unearthed it, after the fall of the Berlin Wall and wrote about him in his biography of Hitler’s physician, Karl Brandt. Gerhard’s murder was recorded, not as euthanasia, but as “heart failure”, like so many others. He, of course, like those victims of mercy killings today, did not consent to his death. Few know of Gerhard’s life, or death. If it had not been for Ulf Schmidt we would not even know his name. Many of the other victims of T4 remain nameless even now. Astonishingly, those responsible for murdering their “patients” could escape responsibility – by claiming that the patients they had killed had a right to medical confidentiality.
The last victim of T4, Liz Crow says, was a four year old disabled boy, Richard Jenne. “The American forces moved into Bavaria, the last area they liberated, and they put a protective ring around the local institution for disabled people, not knowing about T4. He was killed. Four weeks after peace was declared.”

Too many of the victims of T4 remain nameless. And naming the dead, and what was done to them, matters. I believe that Gerhard’s story, Richard’s story, and those of other disabled people murdered like them, should be known and taught in British schools. They were human beings, not beastly burdens who should be put out of their misery. We owe it to them to remember them, and to give them their rightful place in our common history. For if we do not learn from history, we cannot guarantee that it will not be repeated.

A world without Down’s Syndrome?

Yesterday, like a lot of people, judging from Facebook and Twitter, I watched Sally Phillip’s documentary, about her own experience of having a much loved son, Olly, who has Down’s, (and two other children), and also about the wider picture once a new screening programme goes live. This new screen is non-invasive and it’s thought up to 99% of foetuses will be identified. Sally travelled to Iceland, where the test is in place, and where there is a 100% termination rate at present.

There was an outpouring of emotion on either side of the debate. Many viewers, of which some had children with Down’s themselves, praised the programme. A smaller number felt that the programme was not balanced and did not give the other side of the debate – the lack of support for families, or how best to express the woman’s right to choose, sufficiently strongly.

I think it was a very strong documentary, with a wonderful and engaging presenter. I think, from the programme, that Sally herself is on a journey, exploring the woman’s right to choose and what implications that has, after this test is introduced, for people with Down’s. It’s a very difficult area, sensitively explored. In the end, given how hard that right was won, I support the woman’s right to choose, but I do feel that we need to see far more positive images for people with Down’s and disabled people generally, in society. The medical profession does need to work on its presentation of the diagnosis too – it is not a curse, or a tragedy, to raise a disabled child. It may well be a challenge, given the cuts and the attitudes of many in society, and particular conditions present particular challenges. That’s not the same thing. Luckily for me, living with chronic migraines, this is not a condition that could be picked up with testing and no doctor has ever suggested, to my knowledge, that migraineurs do not have a right to life. But where will the dividing line fall, in the future, between those granted a right to life, and those deemed a ‘risk’ to their parents, and a burden?

It made me look back at my own book, Scapegoat: why we are failing disabled people, which was published in 2011. In the chapter, Not them but us: society’s challenge, I examined the wider issues of our attitudes towards disability. When we condemn the perpetrators of disability hate crime (the main theme of the book) we tend to believe that they are in the wrong – and that we are better than them. But our general attitudes, although they are shifting in the right direction, remain somewhat negative – especially when it comes to disabled people marry, or disabled children coming into the world. As I wrote then: “Discrimination starts before birth for a disabled person, and continues right up to the point of death. Expectant mothers are offered an increasing array of pre-natal testing and if there is the possibility of giving birth to a disabled children they are offered, quite rightly, counselling and advice on which steps to take. As a feminist, I do believe in the right to choice whether or not to continue with any pregnancy, but this does not take place in a framework of neutrality towards disability.” I haven’t diverged from that view, even though I wrote that chapter five years ago.

Lastly, as I wrote in my conclusion: “The obsession with the body beautiful, which puts such pressure on young people to self-harm and stop eating, and on people of all ages to have risky cosmetic surgery, is as damaging ow as it was in classical times, if not more so….Perhaps one of the saddest consequences of this is the choice that some parents of disabled people make, to mask the obvious signs of their child’s impairment (particularly children with Down’s syndrome) with cosmetic surgery, so that they can avoid the mockery that they would otherwise face. So where do we start to make the change? It has to start with an acknowledgment that none of us is perfect – that is what makes us human…We all grow old and infirm, and die. But at those times of vulnerability, we still believe that our humanity should be recognised, beyond our looks, our ability to work or our intellect. Disability, therefore, is part of our human condition and cannot be set apart.”

 

Well done to Sally, and a great production team, for raising these thorny and heart-felt questions.

 

 

 

 

Disability hate crime motivation survey – results

About a month ago, I designed and sent out a short survey about disability hate crime, concentrating on motivation, but also covering a few other questions such as location of incidents, gender and race of attackers and nature of the incident or attack. This was done under the auspices of the Disability Hate Crime Network, for which I work as one of the pro bono co-ordinators. Grateful thanks to all the co-ordinators, for all their input – it was so valuable – particularly Simon Green’s thoughts in the very early stages, when we came up with the idea, and later Anne Novis, Stephen Brookes, Mark Cutter, Mel Close, Rosemary Irwin, Sarah Hewitt and Beverley Smith.

We are all very grateful to everyone who has done the survey – it is only a small survey, but we believe it does shed some light on the motivation for some attacks, and hopefully it will lead to more detailed research in the future.

Thanks also to the Guardian newspaper, which has commissioned me to write a short comment piece on the research in Guardian Society. Thanks to Survey Monkey for the survey template. It’s appreciated. It allows not-for-profit organisations like ourselves, with no funding, to carry out small bits of research for free (except for our time). We hope it contributes to the wider debate on what fuels disability hate crime.

Below is a longer summary of the results. Please feel free to share widely and discuss. But bear in mind it is a self-reporting survey, of just 100 disabled people, who we found through personal contacts, the Disability Hate Crime Network, and social media. It’s a start to further research – not an end.

Summary of key findings from disability hate crime motivation survey

Question 1: do you define yourself to be a disabled person?

89% of those completing the survey defined themselves as disabled people.

Some of those who didn’t self-define were completing the survey because other family members had experienced hate crimes.

65 shared their conditions, with some explaining they had done because they felt it had triggered an attack.

One person, who had a number of conditions including anxiety and depression came home after suffering a horrific sexual assault and murderous attack. They wrote: “My neighbours had seen my facial injuries and saw I had lost my front teeth and had put two and two together after watching the local news on TV. They could see how vulnerable I was, and this was when everything escalated so badly that I sold my house to a landlord, moved out and had to rent for a while…I did this as I was desperate to escape the bullying for my daughter and myself.”

Another, with rheumatoid arthritis, causing impaired mobility, was targeted because of their blue badge, as was an amputee, who was shouted at for using a disabled parking bay and called a ‘scrounger’. Another wheelchair user felt they were targeted for having a visible disability.

Question 2: have you experienced a hate crime or hate incident?

87.2% of those responding had experienced a hate crime or incident.

11% had not.

61 explained more about their experiences, which were wide-ranging. Some flashpoints, however, were familiar – public transport, disabled parking bays, jealousy about perceived ‘perks’ and ‘not looking disabled’:

One person said: “I have had cars parked close to the rear of my car to make it difficult for me to load my wheelchair…I’ve experienced a number of incidents. I’ve been chastised

for managing to walk to my front gate without my walking stick, (it’s only a couple of steps). I’ve been insulted for using a disabled toilet and slapped on a bus for using a designated seat. I’ve twice been reported to the DWP for being a ‘bogus’ claimant…had my car repeatedly scratched (16 reports to police), had my car spat on and an egg thrown on it.

Another said: “I was having much needed repairs to our conservatory when a neighbour shouted over the hedge ‘if I was living on benefits I’d have a conservatory too!’ The conservatory came with the house and was over twenty years old.

Another reported: “I’ve had a man trying to take away my walking stick saying I was “too young and beautiful” to use it. I’ve had two men try to shove me out of the way on a pavement because I was walking too slowly and they were trying to get to a pub,

On occasion, children were involved: “I was deliberately barged into by more than one of a group of 8 year French old children who were on the same site as a convention I attended. The children from this language school were harassing disabled attenders of our convention, kicking sticks/crutches out from under people and barging into them “accidentally”. Their supervising adults weren’t supervising properly. My friend who was with me didn’t see the first child bash into me, but she heard them making remarks about my arms and saw the second child bash into me. I was furious as I had noticed the children barging adults off the paths around the site. I complained to the university venue who were useless and my convention organisers who were superb and reported it to the police alongside a number of other disablist, LGB and T phobic hatecrimes our bi convention got on that site. The police took a statement and went around pestering the university venue management till the children’s supervisors were found and doing their supervising which reduced the harassment a bit. The police then didn’t follow up as promised which I found frustrating and I knew no charges could be pressed as identifying the specific children would be hard.”

Another talked about public transport: “I was travelling on a bus to shopping one day and the bus was quite full but a guy who had a pram wanted to sit with his partner and wanted to sit at the front where I was sitting and demanded I move. I said no, and tried to explain about my disability. He called me a ‘spas’ and a ‘mong’ and said I should not be left out.

A lack of understanding of disability is evident:

“I was asked why I use a wheelchair some times but had been seen using sticks on others days, I tried to explain that my condition varies from day to day and on days when I can walk I try to do so. I was then told I was just fat and lazy and was doing it to get benefits. I have been abused for using a blue badge. Been called a spastic, and to go to bloody work…I have been spat at.”

Of the 61 who gave further details about their experience, 11 mentioned being called ‘scroungers’ or being told to get off benefits, or that they were too lazy to work.

Question 3 – What was the location of the hate crime or incident?

The locations chimed with places that both the Equality and Human Rights Commission (EHRC) and I, in both Getting Away with Murder and in my book, Scapegoat, have identified as flashpoints for disabled people in previous research.

24% of attacks happened at home; 57% on the street, 4% in care environments, 20% on public transport, 12.8% in schools or educational establishments, 3% in hospitals and more than one place – 28.5%. This last category allowed people to name other places where attacks took place as well. 26 people added extra comments. A small number reported being attacked or harassed on social media or at work.

Other attacks happened in pubs, supermarkets and in the car. One person said: “This is not a single incident, rather an accumulation of incidents that are very similar. It makes you dread using public transport at times.” 6 out of 26 said that attacks happened in supermarkets and shops.

Question 4: What do you think the motivation for the attack was?

67 answered, and 33 skipped this question.

Interestingly, few people – two – pin-pointed ‘scrounger rhetoric’ as behind disability hate crime although it is important to stress that a larger number had mentioned it in previous answers. 34 said ‘disability hate’ or ‘disability’ without going further. A number – 7- felt that ‘vulnerability’ – a feeling that the attacker could ‘get away with attacking them without any come-back had increased the hatred towards them. There was also a clear theme of jealousy toward perceived ‘perks’ of disability – which some non-disabled people had tried to either exploit or had attacked the disabled person for, out of hostility. One person felt they had been targeted because of their ethnicity and disability.

One person said: “I think the main motivation is “because they can” .. I am in no position to defend myself.. Although the harassment escalated when I took over the tenancy of a local authority garage located on an access road these people believe to be “theirs” (it isn’t)….After taking on the tenancy I started to experience an increase in frequency of incidents of abuse, threats and harrassment culminating in me no longer using the garage, hardly ever leaving the flat and if I do getting in the car and going away from here, no longer sitting in the garden with a book/the radio, constantly being jumpy and nervous, etc..”

The person who experienced the sexual assault wrote: “They saw me ill following the serious assault and I believe the motive was my vulnerability (I had had no problems with these particular neighbours when my health had been normal).”

Another felt that they had been exploited and targeted:

“They saw my disability and were aware of benefits I received. One person became my boyfriend and would threaten to finish with me or harm himself if I didn’t give him money, or buy him mobile phone s. I ended up with eight mobile phone contracts, which I later found out he was selling and using the money for drugs.”

Another wrote:”I wish I knew. People are just plain spiteful. I was an easy target who could never fight back physically, so, I was a punchbag, both physically and mentally.”

One person felt it was a mixture of motives: “exploitation of vulnerable people, attacking someone who can’t fight back, your word against theirs, sadism”.

Another felt it was partly due to the benefits crackdown: “Bigotry, fuelled by propaganda against people on benefits”.

Another person saw it as mixed too: “Venting a prejudice is I think the main motivation. There’s usually some kind of ‘useless’ part of the labelling, a bit of ageism, a bit of disablism, and a very unpleasant bit of invective. Plus a ‘get out of my way, or why are you blocking everything up’, or some such. A typical one, ‘get out of my fucking way you old hag’, or ‘bitch or get back to your shithole you geriatric cow’.”

There was a sense of the perceived uselessness and invisibility of disability. One person wrote: “On one occasion when I fell a man just stepped over me like I was vermin… I have been shoved backwards into the lift as I attempted to leave. Two women walked past me – instead of allowing me to move forward they just carried on walking, pushing me backwards back into the lift door. I felt ignored and overall humiliated.”

Another wrote: “Most of the abuse is from strangers , who now think that every one who is disabled is lying about being ill. Because this government are spreading so many lies, regarding us. Also relations who think you can be better and go to work as you are not ill every day. Also I am sorry to say at church through ignorance. Also benefit assessments. I have also been pushed off of sticks by a stranger who was very abusive.”

This was echoed by others, along with a strong sense of jealousy:

“Disability hostility, resentment as think I get money, that I don’t work or worth helping. Jealousy of adapted car, irritation as may be in their way on street, young people think its funny, therefore worth ridiculing me, some truly believe we are drain on society, should never be allowed to be born or live, others think easy target.”

Another identified a freak-show element: “Mockery of disability. The teenagers concerned were known to the police and to local school teachers as perennial troublemakers.”

These came up again: The perpetrators were three young women who were shouting at a middle-aged man with Down’s Syndrome and calling him brain dead….Their motivation appears to be ignorance and/or perceived comedy value.”

Question 5: What gender was your attacker?

69 respondents answered this question and 31 skipped it.

30% of sole attackers were male, and 17% female. Interestingly, there was more than one attacker in 49% of cases and in most of those women were involved (accounting for the rest of the attackers). It’s worth mentioning that in the latest Crown Prosecution Service Hate Crime Report, women are defendants in around 25% of disability hate crimes, but only around 13-15% of other forms of hate crimes, except crimes against older people, where they are also defendants in around 22% of the cases. Clearly, as I have written before, there needs to be far more research on the role of women in disability hate crime (and older people, a cross-cutting group).

One person recalled:

“Pushed from chair by women, verbally abused by both men and women. Usually older people.”

Another said: “Male in most incidents, some verbal incidents have included females in group (at least one group appeared to be a family with adult children), one verbal incident involved a female only.”

Another wrote: “Worst incident – an older white woman. Otherwise, mostly men.”

Another wrote: “Two separate incidents attacked by black male gang of young men, attack on street Young mother with child abused me in shop car park.

Question 6: What was the approximate age of your attacker?

Age of attackers: 61 answered this, and 39 skipped it. The percentages did not add up to 100%, because of group attacks.

Under 16: 19.67% (12)

16-20: 18.03% (11)

21-30: 32.79% (20)

31-40: 32.79% (20)

41-50: 29.51 (18)

51-60: 11.48% (7)

61 and over 11.48% (7)

Prefer not to say 3.28% (2)

Many pointed out they were attacked by more than one person, so more than one age group but perhaps there is a small chink of light that the percentages of attacks by younger people are slightly lower than people in the midrange for age.

Question 7: What do you think was the ethnic group of your attacker?

63 answered and 37 skipped

90% of attackers were white, 5% were mixed heritage, and other counted for 5%

White people are slightly over-represented as attackers in this survey – the last census found that 86% of the population identify as white.

 

Question 8: What is your gender?

71 answered and 29 skipped.

53% of respondents were female, and 45% male, with others preferring not to say.

Question 9: What is your ethnicity?

94% were white, 1% were mixed heritage, 1% was a highly identifiable racial group (so I am not including it here) and the remaining preferred not to say.

If you would like to join the Network and have an interest in disability hate crime, please go to:

https://www.facebook.com/groups/disabilityhatecrimenetwork/

If you would like to know more about disability hate crime, you can read the first report I wrote:

Click to access Getting-away-with-murder.pdf

If you would like to read my book, Scapegoat: why we are failing disabled people (Portobello, 2011), an investigation into disability hate crime in the UK and further afield, you can buy it in good bookshops or online at:

Disability hate crime motivation survey

Over the last few years many disability hate crime campaigners have called for perpetrator analysis. I am one of those: I have been advocating for it since 2008, when I wrote the disability hate crime report, Getting Away With Murder, (for the UK Disabled People’s Council, Disability Now magazine and Scope). At the (British) Disability Hate Crime Network, run on email and Facebook, of which I am one of the co-ordinators, we believe that perpetrator analysis is important because without knowing more about why people commit this crime, it is very difficult to design programmes that prevent it from happening or dissuade offenders from committing similar crimes again in the future.  (I recommended it again in my book, Scapegoat: why we are failing disabled people, published by Portobello Books in 2011.)  The Equality and Human Rights Commission recommended it in its report, Hidden in Plain Sight, published in the same year. The government promised to carry it out – which we joint coordinators at the Disability Hate Crime Network welcomed.

But it hasn’t happened, much to the frustration of many working on disability hate crime. It has been promised, through the National Offender Management Service and the College of Policing, but as far as we have been told, has not yet been published, despite many requests to see the data.

Simon Green, a co-ordinator of the Disability Hate Crime Network and I were talking about motivation recently. He was talking about the crimes against him, and how it was clear what the motivation was. So we came up with the notion: if the analysis of offenders is not going to be published, why don’t we ask victims and survivors of disability hate crime whether they know why the crime against them was committed? Often people who have experienced this crime have very useful thoughts to feed into our knowledge of the crime – but at the moment, that knowledge is not being tapped.

We decided to do a short snapshot survey of people who have experienced disability hate crime to ask them this question and a few other questions that might throw light on the crime – such as location of the crime, gender, age of the attacker and so on. We hope the results may throw some light on disability hate crime and possibly lead to a longer and more detailed study, if there is funding available.

Please do complete the survey – but only if you are living in the UK and have experienced disability hate crime. We hope that the results will tell us more about motivation – the missing part of the jigsaw. In so doing, it may aid prevention of this crime in the future.

I would like to thank all the co-ordinators for helpful comments on the design of the short survey. All identifying details will of course remain anonymous; only non-identifying details will be shared and once analysed the data will be destroyed.

Please go to our Facebook page to do the survey:

Facebook.com/groups/disabilityhatecrimenetwork

 

 

 

 

 

 

 

 

 

Hate crime, Norway, and a Scandi crime thriller

I took off for a quick trip to Norway last week, at the kind invitation of the Norwegian Network on Disability, to talk about my journalism uncovering disability hate crime way back in 2007 – though of course it’s an ongoing project – with the help of many activists, journalists and a few senior police officers who believed that disabled people were getting a very raw deal from the British legal system.

I don’t think I could have done that job without the help of two disabled feminists, Ruth Bashall and Anne Novis, whose understanding of gender based violence had underpinned their own grasp of disability hate crime. My own journey too started with the women’s movement, with the understanding that wherever you have an imbalance of power someone will abuse it (you can see that dynamic in care homes right now – read Goffman if you really need to understand the theory behind it). What the women’s movement did, brilliantly, was link activism and evidence to practice – and change how the legal system treated women affected by domestic violence and rape, to name but two gendered crimes. What we did with disability hate crime was shot through with the same anger and the same understanding that you have to have your evidence – your ducks in a row – before you can get change. Ruth and Anne had some of that evidence – my job as a journalist, along with my great friend, John Pring, at Disability Now, and a team of young disabled journalists, was to marshall so much that there had to be action and change.

Now, in Norway, in 2014, journalists and activists are asking  – how do they go about creating that same process of change? As Berit Vegheim, a prominent disabled activist told me, she is coming across the very same disbelief that I encountered in 2007 – every time she finds a disability hate crime in Norway in her research, the police find an excuse as to why it was treated as something else (their hate crime law dates from just last year) – youthful high spirits, or motiveless malice – anything but disability hostility. (Katherine Runswick-Cole, from Manchester Metropolitan University also gave a presentation on disability in the time of austerity in the UK – I wish I had been able to stay for that.) There is a real unwillingness to accept that some people dislike and fear disabled people. But they do. Now Norwegian journalists and disabled people are putting together their own project to map disability hate crime there. I wish them all the best. I wish it wasn’t necessary. But I’m glad they have the laws, and really glad that the British experience is of some use. After all we all love a good Scandi thriller when it’s fictional – but it’s not so fun to star in one, unwillingly, as the victim.

 

 

Wadham Human Rights Forum talk

I enjoyed doing my talk at the Wadham Human Rights Forum at Oxford University, on how human rights journalism is evolving in the age of the Internet – and how to fund the new human rights journalism. The Forum has had some wonderful thinkers visit – from Clive Stafford-Smith to James Harding, former editor of the Times and some great human rights scholars. I was honoured to be one of their number. 

Lord Macdonald, who is now the Warden of Wadham, is also the former Director of Public Prosecutions and a really doughty defender of human rights. His work within the criminal justice system, to uphold the rights of the individual against the state, remains so important and ground-breaking. Now, at Wadham, he is encouraging young people from modest backgrounds to aspire to Oxbridge – also a radical aim – and also encouraging disabled students to reach high.

You can see it here – I’ve also suggested some links to some interesting thinkers on the future – both journalists and techies. 

http://www.wadham.ox.ac.uk/news/2014/march/an-uncertain-future-for-human-rights-reporting

 

 

Why Bijan Ebrahimi’s murder should cause the British legal system to ask itself some hard, hard, questions

An innocent Iranian, Bijan Ebrahimi, is dead, another name to add to the grim list of disabled people falsely accused of sexual crimes they didn’t commit- and then cruelly murdered. I grieve for him and his family. I share an Iranian heritage too, on my birth father’s side. (If you want to read about my own story, and how I came to live in the UK,  you can do so here: http://www.amazon.co.uk/Blood-Water-Anglo-Iranian-Kindle-ebook/dp/B00E00BEZQ/ref=la_B004GH8LS6_1_4?s=books&ie=UTF8&qid=1383565614&sr=1-4)

The Ebrahimi family, like so many others, have lived through the turbulent history of our country and Mr Ebrahimi is reported to have had refugee status in the UK. They – and Bijan, perhaps, in particular, as a disabled person, should have found solace and comfort in the UK, as I have done. Instead, their beloved Bijan is dead and he shouldn’t be. He needn’t have died. The British legal and social care system failed him, and I, as a campaigning journalist, will do my best over the next few months, to raise the profile of his case and try, as best I can, to bring some closure to the family who clearly loved him so much. At the Disability Hate Crime Network, on Facebook, co-ordinated by Stephen Brookes, Anne Novis, me and others, we will continue to follow the case and hold the criminal justice system to account. We will not forget Bijan Ebrahimi, and as a number of us hold advisory posts within the criminal justice system, we will do our best to make sure that what happened to him will be a wake-up call to our legal system.

I know, from my friend Anne Novis, whose seminal work in raising the false rape allegations against disabled murder victim, Albert Adams, kickstarted much of my research, that the Metropolitan Police Service is already looking at Bijan Ebrahimi’s case, and asking what lessons it should learn from it. Stephen Brookes and Ruth Bashall – both great disability rights campaigners –  are going to share their thoughts about the case at the College of Policing tomorrow. Let’s hope those lessons are spread far and wide – throughout the British legal system.